Location:
New York


Sheryl Discusses Living
with FTD and PPA

About:

My name is Sheryl and I was diagnosed with PPA/FTD seven years ago.

Advocating is extremely important to me! I support others who have FTD in several support group where I am an admin. These groups include:


-FTD patient support group
-Ask the FTD patients group
-The Primary Progressive Aphasia Support Group

My kids and my sister (who is my caregiver) are important to me as well. I am an animal lover – I love cats! I love dogs!

In the past I’ve enjoyed...
Needlepoint, knitting, reading, bowling...

Currently I enjoy...
Animals – cats and dogs, needlepoint, knitting, going to the AFTD conferences and seeing all my fellow FTDers.

I was a secretary, then I was a medical biller for about nine years. After getting fired from three jobs within a year and a half span, I started my own dog walking business for three years until I started forgetting my clients.

Now, I find purpose advocating and running my groups. I also volunteer for The AFTD – The Association for Frontaltemporal Degeneration. That is a full time job! I also help with other groups as well.

Since my diagnosis, I have been really successful at learning, learning, learning, research, questioning, and finding things out! I’ve always been really good at Googling and finding things out.

I am working really hard at Making memories, looking for the positive in everything. Finding humor in the challenges of FTD is what gets me through.

Quotes:

“Live each day as it comes.”
“Find the positive in each day.”
“A diagnosis of dementia is not the end!”
“Find a purpose that makes you happy and just keep going forward.”



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