New York / North Carolina


My name is Lynn Moore and I’m originally from upstate New York.  And now, I live on an island in the Atlantic Ocean.  Although I was diagnosed with FTD in 2011, I didn’t notice major changes until 2020.

As a retiree, I filled my days with volunteering at two local hospitals and rescuing injured birds which I’ve had to stop because I can no longer drive safely.   However, I continue to serve as a docent at the Museum of Coastal Carolina and I also line dance outside here at Ocean Isle Beach.  I work virtually with ostomates, before and after surgery, helping them adjust to their new normal.  My husband and I supervise the care of three parents as well.

I very much enjoy weekly meetings with DAA (Dementia Action Alliance) and PAC and have made many new virtual friends.  I’ve been married forty seven years and my husband and I have had cats in our home all this time!  We adore our furry friends and can’t get enough of their cuddling, chirping, and purring.  Something I would love to see happen is to decode cat language so that when my cat and I are having a conversation I would understand what she is saying.

I share Teepa’s name wherever I go - I even put it on the top of my Christmas letter this year so that everyone can find out how to help loved ones in their own families.  When I attended the first session with a group just for people living with dementia, I was a little apprehensive.  What would they look like or be like?  Lo and behold, they are just normal people!  We all laugh together, especially when somebody forgets, or misspeaks, or gets confused because each one of us has done the very same thing.  Turns out, there’s more support out there than I had any idea!

Helpful Tips for People Living with Dementia:

One new support I just added is a mini white board that sits next to me on the table.  It serves as an easy visual cue for me to see what the day is and what I need to do for that day.  It includes the day and the date and the times for all my activities.

Something I’ve noticed with all my virtual meetings is how helpful a headset is.  It gives me comfort, blocks extraneous noises, focuses the sound, and makes it easier to hear and concentrate.  It allows me to follow the discussion and enjoy the meeting.

Right now I am trying to get my care partners more knowledgeable and informed about the characteristics of FTD and how to best support me as I live with these challenges.  As they learn more, they respond in a much more positive way and confront me and argue less as a result.  This makes life much more pleasant and peaceful for all of us.

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