Where in the World is Dementia? Getting Connected to the Folks That Know!

Where in the World is Dementia? Getting Connected to the Folks That Know! post page

Corrie Phillips

By Corrie PhillipsFebruary 17th, 2020

Where in the World is Dementia? Getting Connected to the Folks That Know!

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by Corrie L. Phillips, PAC Team Member


Dementia is everywhere! How do we know this? Because we hear from People Living with Dementia (PLwD) and care partners every day. One of the most commonly asked questions we receive is, “Where can I learn more about dementia?” My answer to this question is: Go right to the source!

 

Whether you are living with dementia or provide support to someone who is, it’s valuable to get different perspectives. We are all unique and manage our day-to-day lives in different ways so why not get some new ideas from someone who is walking a similar path? Or perhaps you are just curious. There are many people out there who would love to share more with you.

Check out this video Kids Interview People with Dementia from the Alzheimer’s Society.

There is a common misunderstanding that when someone receives a diagnosis of dementia, they no longer are able to share their experience or opinions. The medical community talks about them rather than to them. At PAC, we believe that PLwD should be heard. There are many people living with dementia who are advocating for culture change. Their opinions and experiences matter and they can help us all learn more about living life with dementia.

Here are a few sites you can visit to get started:

Blogs (for those who enjoy reading):

Alzheimer’s: The Journey – Brian LeBlanc

Truthful Loving Kindness

Listen to Us

Too Young for Dementia?

Suddenly Mad

Video (for those who enjoy watching):

This Dementia Life – Dementia Action Alliance

Living Life with Lisa

Alzheimer’s Society Youtube Channel


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