Lauren With A Side of Lewy

Lauren With A Side of Lewy post page

Online Dementia Journal

By Online Dementia JournalJune 15th, 2019

Lauren With A Side of Lewy


by Lauren U,
PAC Core Team

A bunch of PAC folks got together for some PAC training. I go along for the frolic, fellowship, and family. There is a lot of talking, a lot of noise, a lot of activity, and a lot of laughter. It's a pretty happy bunch of people. Everybody here participates. Everybody is important. I meet new people and spend time with old friends. Mostly, all of the people I've met over time are genuinely interested and passionate about dementia care. Those who aren't don't hang around for long.

It can be overwhelming to be around all these animated people. I'm set up with drinks, toys, and a different point of view. I sit near an exit so I can pace or wander without being disruptive. There is a lot of emphasis on communication. There are a lot of hand gestures. Everyone seems to know how and when to do them. People break apart and form again into new groups for experience and practice. I watch, I count, I listen, I sort, and today, I write. There is talk about human behavior. Ah, behavior. "Lewy Body Dementia with Behavioral Disturbances," Funny. The humor of this diagnosis is not lost on me. 

I can see that some of the skills are difficult to master but it looks like everyone is enjoying the experience. It's the culture here. Proper PAC stance requires this, by definition. Positive Approach to Care cannot be just an empty title.

Lauren U is a member of the Positive Approach to Care (PAC) Core Team. She was a registered nurse with the ANCC Board Certification in Psychiatry for 30 years. Now she is the keeper of the frolic. Lauren has been living with Lewy Body Dementia (love how they add "with behavioral disturbance") for over five years. She currently lives in Northern California with her professor husband, Eddy. PAC agrees with Lauren – that she is delightful!

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