Lauren With a Side of Lewy

Lauren With a Side of Lewy post page

Online Dementia Journal

By Online Dementia JournalJune 23rd, 2020

Lauren With a Side of Lewy


by Lauren U,

PAC Core Team Member

Our garden continues to grow nicely. We will soon have a lot of tomatoes, squash, and peppers. Our citrus trees have fruit that only needs ripening. I'm mostly waiting for the most delicious and perfect food on Earth, my kumquats. The yard is blooming with colorful flowers. Eddy did some very nice work in our front yard and we now have a sizable succulent garden as well.

My Facebook feed is bombarding me with ads for chocolate, candy, fudge, and cookies. Oh, how I love chocolate. I'm tempted but have not yet indulged.

What I'm looking for now is safety, purpose, and comfort. I feel safe with Eddy and my dogs. I need and want more time with PAC. Like everybody else, I'm following the guidelines to protect against the coronavirus. I feel ashamed that I am not doing my part, as I would have been had I still been working as an RN. I don't mind wearing the mask near as much as I dislike it on others. How can it be safe if I cannot see faces? How do I verify that what lies behind the mask is even human? Is this safe or is it unsafe? I'm finding it more and more difficult to sleep, eat, and focus. What sometimes helped isn't effective now. I miss Saturday Club. My usual, familiar schedule is gone, replaced with more fear, anxiety, loneliness, and paranoia.

As there is no clear-cut solution and end to this virus, there will not be a clear ending to this article.

Lauren U is a member of the Positive Approach to Care (PAC) Core Team. She was a registered nurse with the ANCC Board Certification in Psychiatry for 30 years. Now she is the keeper of the frolic. Lauren has been living with Lewy Body Dementia (love how they add "with behavioral disturbance") for over five years. She currently lives in Northern California with her professor husband, Eddy. PAC agrees with Lauren – that she is delightful!

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