Resources

Associations and Organizations

Related to Dementia or Aging Needs


National Association for Professional Geriatric Care Managers

NAPGCM is a non-profit professional development organization whose mission is to advance professional geriatric care management through education, collaboration, and leadership. A professional Geriatric Care Manager (GCM) is a health and human services specialist who helps families who are caring for older relatives. The GCM is trained and experienced in any of several fields related to care management, including nursing, gerontology, social work, or psychology.


Leading Age

The mission of LeadingAge is to expand the world of possibilities for aging. Our membership includes 6,000 not-for-profit organizations representing the entire field of aging services, 39 state partners, and hundreds of businesses, consumer groups, foundations, and research partners. Together, our members touch 4 million lives every day. LeadingAge is also a part of the International Association of Homes and Services for the Aging (IAHSA), which spans 30 countries across the globe. 


Planetree

A not-for-profit organization that works with hospitals to improve the patient experience. Planetree’s philosophy is based on a simple premise: care should be organized first and foremost around the needs of patients. To understand those needs Planetree turned to the source. Thousands of focus groups—from bedside to boardroom—with patients, long-term care residents, families and professional caregivers across the globe have borne out their needs and desires for a more personalized, humanized and demystified health care experience.  Bringing these concepts to life requires a shift not merely in operations but fundamentally in culture. Planetree guides providers through a structured process that enables caregivers to transform the health care experience they provide. Planetree has a nearly 40-year history of partnering with providers across the continuum of care to transform organizational cultures and delivering health care that is putting the needs of individuals first.


Broyals Foundation: Caregivers United

Our Mission is to turn the crisis of caring for a person with Alzheimer’s Disease and dementia into a positive life event and to ensure the best quality of life possible for all involved. We provide loving support, practical skills, resources and hope to caregiving families and healthcare professionals. It is the unique nature of caring for a loved one with Alzheimer’s Disease that sets us apart. This caregiving involves a social model which is done “with” not “for” the loved one.


Second Wind Dreams

Second Wind Dreams® was formed in 1997. It's name derived from a novel of the same name by P.K. Beville, a geriatric specialist who wrote about the wonderful, colorful and sometimes hysterical people who live and work in nursing homes.

Since 1997, SWD has become involved in more than 400 eldercare communities in 40 states, and Canada. Weaving thousands of dreams from the simple to the sublime. The mission of Second Wind Dreams® (SWD) is simple -- to change the perception of aging through the fulfillment of dreams and the offering of innovative educational opportunities to caregivers and communities.


American Association of Medical Directors

The Society for Post-Acute and Long-Term Care Medicine is dedicated to excellence in patient care and provides education, advocacy, information and professional development to promote the delivery of quality post-acute and long-term care medicine.

AMDA is a democratic organization governed by a Board of Directors that is elected by a House of Delegates, with delegates from 43 state chapters. In 1992, AMDA joined the House of Delegates of both the American Medical Association and the American Society of Internal Medicine and was recognized as a specialty society of these organizations.

Although the association's name reveals its origins, the reality is that AMDA has always served the interests of both medical directors and attending physicians. Because the vast majority of medical directors also serve as attending physicians, their issues have been inextricably woven into all of the association's activities.


National Certified Council for Activity Professionals 

The National Certification Council for Activity Professionals is a credentialing body which sets standards and criteria for those working to meet the leisure needs of those in their care. NCCAP sets the following goals as means to achieve its mission:

* Directly provide opportunities for and/or information about educational offerings thereby enabling its members and potential members to pursue professional development.

* Educate on behalf of its membership on issues regarding credentialing in the political and industry spheres.


I'm Still Here Foundation


To bring about community transformation for those living with cognitive challenges. With an emphasis on arts and culture, education and public policy, the ISHF advocates for a broader perspective; one in which our shared humanity takes precedence over a clinical diagnosis. The ISHF has four primary initiatives:

  • ARTZ: Artists for Alzheimer's: creates and facilitates regularly occurring arts and culture events for people affected by dementia. These programs include the ARTZ Museum Network, Meet Me at the Movies and Make Memories, Meet Me through my Art (intergenerational), and the ARTZ Volunteer Campaign.
  • It Takes a Village: is a collaboration with art, culture, business and civic organizations, creating a community inclusion program for individuals with dementia, their care partners and family members in towns and cities within the U.S. and Europe.
  • Research Division: The Foundation collects and analyzes data from each of its programs. Findings are shared at international conferences and published in academic journals, end-of-year summaries, and press releases. 
  • Public Narrative is the Foundation's emphasis on promoting culture change via education and public policy, thereby reducing the stigma which often accompanies a diagnosis. This stigma has been shaped by our society's public narrative (collective story), a model that illuminates despair as its main theme. The ISHF is creating a public narrative based on a model of hope - in which people with dementia have a future, can remain in their communities and contribute to society.

American Occupational Therapy Association


Occupational therapists and occupational therapy assistants help people of all ages participate in the things they want and need to do through the therapeutic use of everyday activities (occupations). Unlike other professions, occupational therapy helps people function in all of their environments (e.g., home, work, school, community) and addresses the physical, psychological, and cognitive aspects of their well-being through engagement in occupation.
 


AARP

AARP, Inc., formerly the American Association of Retired Persons, is a United States-based non-governmental organization and interest group, founded in 1958 by Ethel Percy Andrus, PhD, a retired educator from California, and based in Washington, D.C. It is a membership organization for people age 50 and over. AARP operates as a non-profit advocate for its members and is one of the most powerful lobbying groups in the United States. AARP Services Inc. offers Medicare supplemental health insurance, discounts on prescription drugs and consumer goods, entertainment and travel packages, long-term care insurance and automobile, home and life insurance. It provides quality control over the products and services made available by AARP-endorsed providers.


American Healthcare Association


As the nation’s largest association of long term and post-acute care providers, AHCA advocates for quality care and services for frail, elderly, and disabled Americans. Our members provide essential care to approximately one million individuals in 12,000 not-for-profit and proprietary member facilities.
 
AHCA represents the long term care community to the nation at large – to government, business leaders, and the general public. We serve as a force for change, providing information, education, and administrative tools that enhance quality at every level.
As part of our extensive portfolio of member services, AHCA maintains legislative, regulatory and public affairs. Our dedicated staff work both internally and externally to assist member providers, the government, and the general public.
 


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Positive Approach to Care

Teepa Snow’s philosophy and education is reflective of her life-long journey professionally caring for and personally living with various forms of dementia. This person-centered approach evolved to meet the complex and unique needs of individuals using effective and structured technique. Teepa and her company strive to grow appreciation of differences that will lead to better care and support of those living with changing abilities.